Is it normal for anyone to have to go through surgery 3times in 3years just to try and live a ‘normal’ life without some element of pain and fatigue?

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But for me and many others I have no doubt is our reality. I don’t know how many times it has to be said that Endometriosis is real and needs some form of successful treatment or cure rather than surgery.

Firstly let me say surgery is not my first option, it has always been a last resort because everything I have tried has not worked, from medical support to changes to my lifestyle. Secondly my consultant (who I have to say is an amazing man) does not go for surgery as an option until all other avenues have been thoroughly explored.

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So here I am 7days post op which has been a very difficult 7days.

My consultant/surgeon I have a fantastic open and honest relationship with him, we have a plan all worked out of how it will run over the next few months:
surgery ➡prostrap ➡IVF ➡review
That is our plan which is what we have stuck to, which I am currently at Stage 2, Prostrap and post op recovery stage.

Let me talk you through the last few days.

Surgery Prep
Stage 1 – due to working on the bowel this time round to be precise scraping the bowel, I had to do the beloved bowel prep the day before. Now I have never done this so it was unknown to me and the worst thing to ever do is research it. After all what I had read, I was prepared but bricking it, just the thought of it was more scary than pending surgery.
The first drink wasn’t too bad, 2hrs in I thought it wasn’t going to work, nothing was happening, do I need to call the ward for advice. Nope 30 minutes later and picolax was doing its thing. The first hour was agony but then it calmed down and wasn’t that uncomfortable. The 2nd glass was horrid which I am not sure why as it was the same thing, but every sip was making me want to throw up. All in all thou after that first hour bowel prep was not too bad, the stomach cramps were minimal I just neede to be very close to the bathroom.

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The following day was surgery day, I was feeling quite optimistic and not really that nervous. I was scheduled for afternoon surgery, planned for around 3hrs in total for start to finish. As usual all checks and run through what was going to happen and I had a heart warming chat with my consultant, who’s final words were “see you shortly”.
I woke up in recovery, can’t remember much apart from shivering and nurses rushing around me dealing with something to do with my abdomen but again unsure what. Finally I got back to the ward where my other half and good friend had been waiting as it was visiting time. I remember get checked back into the ward, still quite sedated and crying as I just wanted to see Neil.

The next day I woke up where I found I had a drain in my abdomen where I freaked out as the last time when they took it out it hurt like hell. AnyhowMr Affifi came to see me and explained how the surgery went. I never thought I would ever hear him say these words ‘ it was a challenge’, I was taken back, he explained how bad it was, everything was stool together to the back wall, he had removed the 2 Endometriosis cysts, removed as much endometriosis deposits off all organs in the pelvis, stomach wall, bowel and bladder, unstuck everything apart from a section of the bowel as it was too dangerous to move as it is stuck to the vagina wall, what he found more concerning was having to remove large blood vessels from my stomach, he said this worried him but he did, in which surgery took 5hrs in total. On a positive note my right ovary and tube is healthy. Hearing what he said I just was so numb and so scared of how dangerous elements of this surgery was.
This disease is real, you may not see it, I may not show it but my god there needs to be some breakthrough as I can’t keep going through this.

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