1. In June 2011 I was diagnosed with Stage 4 Endometriosis, however I have had symptoms of endometriosis since I was 14years old
2. I was diagnosed through emergency surgery where they removed a 9cm endometriosis cyst and my left ovary
3. Within 2 years of diagnosis I have had 2 further surgery, along with several treatments to slow down the growth of endometriosis which alas none has done what it says on the label.
4. Endometriosis is a hidden disease and I live with this every single day. I smile through the pain and raise above the challenges it poses me each and every day.
5. Every day I have suffer with Chronic pelvic pain, back pain, nausea and chronic fatigue, add to this the constant effects of bowel endometriosis
6. I have had to make changes to my life, Learning to live with Endometriosis, which has seen many faces walk away
7. Every morning my body feels like it has been in a fight, taking me 2 hours to get my pain under control to start my day
8. My best friend is my hot water bottle, I couldn’t live without it
9. Every night my body is ready to give in, yet when I go to bed I struggle to sleep due to Insomnia, endo pain and night sweats
10. Every day I take, naproxen, paracetamol, tramadol, oromorph, metoclopramide, laxido and buscopan
11. My illness is invisible but at times frustrates me as people are unable to see there is anything wrong, but I prefer this to be invisible so my support network do not see the real hurt
12. I know everything about my condition as it affects me, it doesn’t mean I am an expert or that I have come to terms with it, I have just done my research to understand my illness
13. The hardest thing I find difficult is that there is no cure and this is permanent condition which effects my future
14. It hurts to know that the chance of having my own child will always be a fight and if it happens it will be a miracle
15. There are no advertisements about Endometriosis, yet it affects approx. 175 million women worldwide. It is only recently that this condition has been mentioned of Casualty and Embarrassing bodies even if this wasn’t 100% factual but it’s a start
16. One day I would like to feel ‘normal’ again and live a day without out some form of Endometriosis pain or symptoms effecting me
17. My illness has made me stronger and not to take life for granted
18. I am so grateful for my support network, if it wasn’t for you all I would not get through the bad times
19. My partner is the strongest person I know; he is with me through thick and thin and never gives up. He always picks me up off the floor when I need it. Nothing is too much for him and he never complains. He is positive and walks this journey with me, every step of the way
20. The hardest thing I find is the fight with health practitioners to take me serious when I need their help. It angers me that still in this day and age that I am made to feel that what I am feeling is in my head and not as bad as I make it out to be ………. My question is “Do you have endometriosis”?
21. My illness is not life threatening, however it is debilitating and has taking away the one thing every women is born able to do which is to create a life
22. There are many things that I hate about my illness, even thou it is invisible, the midline incision scar and several incision scars on my stomach area is a constant reminder of the day I was diagnosed and the impact endometriosis has on my life
23. I share my thoughts, story, journey with others not for sympathy vote but to raise awareness and knowledge of this illness. When someone is diagnosed with this illness they will not feel alone and know there are others out there who support each other. I thank all my Endosisters across the world who share their feelings, thoughts, journeys and unconditional support to each other no matter what
24. I will keep fighting, I will stay strong, I will not give up hope that one day a cause and hopefully a cure will be found
25. Knowing you have taking the time to read this makes me feel that I will never be alone
Endometriosis ~ My Journey 
endohope
A great summary of what it’s like to live with endometriosis. Now I’ve found your blog I’ll definitely keep reading 🙂
Hughffy
Thank you, please share my page too.
Vicky Head
A friend has just shared your blog! I wa originally diagnosed in 2003 and had assisted fertility in 2005 which resulted in the birth of our wonderful daughter in 2006! I was told it had come back in 2011 now waiting to see the regional specialist on Tuesday! I don’t believe I have extensive Endo quite mild in comparison to you but reading your blog has made me quite emotional and glad that I am not the only one in constant pain!
Hughffy
Thank you. Since being diagnosed last year I felt so lost but finding so many endo sisiters and groups has been such a huge supprt to me. I talk to so many women worldwide who have varying stages of Endo and different experiences which helps me not to feel so alone. Please feel free to join my page on facebook. http://www.facebook.com/LivingWithEndometriosis
Rachel
In a week. I’ll be undergoing my 3rd surgery for endometriosis. The last time they removed my left ovary, tube and appendix. I’ve felt so alone for so long with this disease and have finally decided to try and share my story as well as find other endo sisters for support. Thanks for sharing your story, I feel like you do most days. I’ll definitely keep reading.
Hughffy
Please never feel alone, ther are so many of us that understand what you are feeling and going through. I wish you luck with your pending surgery xxx